Thank you SO much to everyone who has ordered shirts and donated so far! =D For those who are interested and haven't ordered, there is one week left to order shirts. (Last day is April 21.) To date, we have sold over 240 shirts and raised over $11k toward Emmett's PIGA research projects! (Hurray!) Here's... Continue Reading →

We met Clement Chow at the CDG Conference we attended at the end of February, and a project grew out of our conversations. 🙂 Read more about the project the Chow Lab started for us on their blog! http://www.chowlab.org/blog-native/2018/4/6/wtdc3kqe1j8ezo4mfeems53q2of2b7  

Next week, Emmett turns two. I still remember the day Emmett was born. I went in for a routine doctor’s visit at 38 weeks, 3 days, but the doctor thought he may’ve seen meconium in my amniotic fluid, so recommended I have my c-section that very day. “Are you ready to have the baby today?”... Continue Reading →