I took a trip to Trader Joe’s in Culver City last year, masked up and full of sanitizer. It was a trip I made every 2 or so weeks. That day, I was wearing one of our CDG shirts. While I was waiting in the checkout line, the woman who was directing “traffic” asked me... Continue Reading →
I remember sitting on our kitchen floor days after Emmett passed, next to Steve, staring at all the beautiful flowers our friends and family had sent. It felt surreal then, and still does. One day your child is there, one day not. One day you’re moving at 100 mph and the next, everything is… still.... Continue Reading →
I’ve had this post written for months but haven’t had the courage to post it. It’s about Emmett’s last days with us … a period I think about often. Because honestly, as precarious as his health was, we didn’t know how little time we had left with him. I don’t know if this will help... Continue Reading →
Thank you to everyone for visiting this page... it has been six months since Emmett passed away, and we wanted a place where we could share pictures, videos and memories of him. We appreciate any and all words you may have to share about what you remember about Emmett, how he may've touched your life... Continue Reading →
I haven’t posted anything since that update about our hospitalization last summer. It’s long overdue… I know. Especially since so much has happened. The truth is, I was waiting to be out of that dark hole that the hospitalization put me in before I wrote anything. It was the first real time I grieved… not... Continue Reading →
On Thursday, May 30, during rounds, the attending decided to go ahead with a PICC line for Emmett. (A PICC line is basically a long IV that goes into a large vein, versus a normal IV that just goes into a peripheral vein. In Emmett’s case, the two PICC lines they’ve placed have gone into... Continue Reading →
I can’t believe it’s been half a year since my last post! I keep meaning to sit down and write one (and I have started a few) but time just seems to get away from me. So for now, I’ll just share this great video Charles Schwab created about Emmett and our ongoing journey with... Continue Reading →
It’s been awhile! Sorry for being MIA… it’s been a hectic summer for oh-so-many reasons. First, Emmett has been sick more than usual. He got what we guessed was a viral cold early July, which improved but then turned into pneumonia two weeks later. We ended up in the ER for the third time this... Continue Reading →
Steve here - in honor of Mothers' Day I'm finally going to make my long-overdue contribution to this blog. I've been trying to write my first post for months and haven't been able to come up with the right topic or words, so I figured that this would be the perfect opportunity to share a... Continue Reading →
Thank you SO much to everyone who has ordered shirts and donated so far! =D For those who are interested and haven't ordered, there is one week left to order shirts. (Last day is April 21.) To date, we have sold over 240 shirts and raised over $11k toward Emmett's PIGA research projects! (Hurray!) Here's... Continue Reading →
Life by Emmett 