In addition to Emmett’s more health-threatening symptoms, he also has Cortical Visual Impairment (CVI). CVI is a little different from other visual impairments because the issues aren’t really caused by physical problems. Instead, there’s an issue with how the brain communicates with the eyes. So as Little Bear Sees explains, the eyes can physically see,... Continue Reading →
One of Emmett’s most visible differences is his g-tube (gastrostomy tube). Most everyone who has spent any time with Emmett has probably seen the tube that sticks out of his onesies. It’s how he eats. We’re comfortable with the g-tube now, but that’s a far cry from how we felt when they first told us... Continue Reading →
We flew to San Francisco late January to visit a neurologist at UCSF. It was his first flight and he did as good as we could've hoped for! We did follow some tips on things to prepare so thought I'd share them here. Have some sort of documentation that proves how old your baby is.... Continue Reading →
Life by Emmett 