I took a trip to Trader Joe’s in Culver City last year, masked up and full of sanitizer. It was a trip I made every 2 or so weeks. That day, I was wearing one of our CDG shirts. While I was waiting in the checkout line, the woman who was directing “traffic” asked me... Continue Reading →
In addition to Emmett’s more health-threatening symptoms, he also has Cortical Visual Impairment (CVI). CVI is a little different from other visual impairments because the issues aren’t really caused by physical problems. Instead, there’s an issue with how the brain communicates with the eyes. So as Little Bear Sees explains, the eyes can physically see,... Continue Reading →
(I'm stuck in the hospital, which means lots of posts to pass the time. 😀 So sorry!) Ever since we've been on this journey, I've sought out information and experiences, largely from online blogs, sites and social media. (Facebook has honestly been one of the greatest things in terms of getting in touch with people... Continue Reading →
This week, we’re back to UCLA Mattel Children’s Hospital to start Emmett on the ketogenic diet, which is basically a stricter/modified Atkins diet (high fat, low carbs). No one is really sure why the keto diet has been proven to show improvement in some types of medication-resistant epilepsies, but it has helped many babies/kids. It... Continue Reading →
Life by Emmett 